Monday, 14 September 2015

'You're looking good' - but I don't feel it: How to respond when you have an invisible illness.

I cannot remember the amount of times someone has commented on how good I look, when I actually feel so ill inside. Many will mean this as a compliment, however it's hard not to take offence because some mean this compliment as a criticism; basically that there can't be anything wrong because you look fine.

What I wanted was a quick one liner I could drill into my psyche and use to dispel any feelings of criticism. So I would like to thank Lisa and all at Invisible Illness Awareness for this list that has been built up by the invisible illness community. It has provided me with what I needed and therefore I want to share for others to find that response they need to stay sane.

I've highlighted some of my favourites.

  1. I am hangin’ in there…
  2. I am so blessed. God is so good.
  3. Drugs are a wonderful thing
  4. I have my good days and I have my bad days.
  5. I clean up well.
  6. I have my ‘good’ days…. but this isn’t one of them!
  7. Thanks, I wish I felt better.
  8. That’s a perfect example of how you can never judge a book by it’s cover.
  9. Thanks, but there are many aspects of my illness which you don’t see … would you like to know more about it?
  10. That’s what most people think since pain can’t be seen most of the time. Have you heard about Invisible Illness Week? It’s really helpful to let people now that most illness is invisible.
  11. I’m trying to appreciate that fact. I know the day may come when I have to use a wheelchair or a cane, and my illness will be more visible.
  12. You should be on the inside.
  13. Thanks. I have more to be grateful for than I have to complain about – which means I have a LOT to be grateful for!
  14. Well I guess I did good job on my makeup, because I am having a hard time to tell the truth.
  15. . . .And that’s all that really matters, isn’t it?
  16. Powder and paint, make you what you ain’t!
  17. It took a lot of work to look like this.
  18. It’s God shining through me
  19. It’s nice of you to think so, but you’re missing the pain and agony that I really am in.
  20. And you look so wise. Looks can be deceiving though, huh?
  21. I’m having a “good face” day.
  22. Yeah. My kid thinks it’s cool I’m an ill person working under-cover!
  23. I do a great job hiding how I really feel.My life is still very challenging and probably will always be, but I am hanging in there, keeping a positive faith, and gratitude as THE attitude. Thanks for their concern.
  24. I’m trying my best to do well OVER my circumstances instead of being under them!
  25. It’s up and down.
  26. I’m still struggling, but it IS nice to have a day when I am able to pull myself together and make it out of the house!
  27. I’m not complaining about my looks.
  28. I’m very good at pretending.
  29. Good, because if I looked like I feel it would scare you to death.
  30. Actually, I still am really hurting…
  31. I am 36 years old outside but 85 inside
  32. Thank you. I’m on my way to the Oscars.
  33. Thanks, I’m grateful for this good day.
  34. Things aren’t always what they seem.
  35. Praise God, I’m glad that he enables me to look so much better than I feel.
  36. Thanks, that’s God’s joy shining through!
  37. Have you ever heard of the spoon theory?
  38. I am upright which is better the alternative
  39. Thanks, want to swap bodies for a few days?
  40. Thanks, I guess I am fortunate that I have an illness that can’t be seen.
  41. Thanks. I like good days.
  42. Want to step inside my skin?
  43. It’s amazing what a shower can do. I guess I am all cried out for now
  44. Thanks. . . I wish I felt it!
  45. I’m not complaining about my looks.
  46. I’m very good at pretending.
  47. Looks can be deceiving (and smile)
  48. Thank God for makeup!
  49. Thank you for caring. I try to act like I feel better than I really do.
  50. Thanks, I am trying to even though it will never go away. I just try to remember things could be worse.
  51. I’d be great if it wasn’t for the pain.
  52. I’d complain but who wants to listen.
  53. If I can’t feel good, at least I am determined to look good!
  54. I’m in good shape for the shape I am in!
  55. Smoke and mirrors!
Additions (please feel free to add more in the comments):
  • Only took 3 hours 
  • Thanks to the person who invented make-up
  • Must be the new lipstick
  • If you only knew
  • Thanks, I guess I look much better than I feel
  • Thank you. I really needed to hear that, because I'm really struggling today
  • Thanks. Can you please remember that - I may need reminding 
  • Thank you. That made my day. I really try hard

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